Advocacy in Childhood Cancer
Jonathan Eric Agin
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Children's Cancer Therapy Development Institute

Representative Advocacy Experience

Congressional Testimony

The Cure Starts Now (CSN) Foundation

  • Member, DIPG Collaborative Council
  • Co-Director, Washington, DC Chapter
  • Moderator, 2013 DIPG Symposium Family Sessions
  • Co-Director/Creator, National Race Against the Odds and Race Against the Odds Series
  • Former Member, Strategic Advisory Council

Recent Lobbying Efforts 

Workshops and Symposiums 

  • Applying Chromatin Biology to Understand Diffuse Intrinsic Pontine Glioma, NIH/NCI (February 2013)
  • SNO Conference - Pediatric Drug Availability Conference (November 2012)
  • Translating Our Voices Into Action (TOVIA) Workshop (October 2012)
  • Advocacy Parent Night, American Childhood Cancer Organization (April 2012)
  • Childhood Cancer Psychosocial Symposium, Mattie Miracle Cancer Foundation (March 2012)
  • DIPG Symposium (March 2011)

Other Experience